NHCC releases assessment report of key knowledge gaps identified in landmark study

NHCC is pleased to release the assessment report of key knowledge gaps identified in Mapping Connections, the report of the most comprehensive study of brain conditions ever undertaken in Canada. Four years following Mapping Connection’s publication, NHCC engaged a team of University of Toronto researchers to carry out a project to assess the current status of knowledge gaps identified by the Study. The Public Health Agency of Canada funded the assessment project.

While some progress has been made in closing some of the knowledge gaps, the overall conclusion was that much more needs to be done including:

  • Increase communication and cooperation among researchers and stakeholder groups;
  • Develop  compendium of initiatives and publications regarding research, treatment, and policy advances and regularly disseminate actively disseminate updates;
  • Hold regular updates, meetings  and conferences of all interested parties (researchers, stakeholders, policy-makers) to encourage greater consensus on further action;
  • Increase  knowledge translation so all stakeholders can benefit.

Read the report here: Mapping Connections Assessment Report 2018

NHCC stresses importance of brain conditions in proposed accessibility legislation

Brain conditions are the largest cause of disability worldwide with one in three Canadians affected by a brain or nervous system illness, disorder or injury, including mental health conditions, within their lifetimes.  In its recommendations for changes to the proposed federal Accessibility Act, NHCC stressed the importance of  flexibility to ensure benefit for people living with brain conditions.  See all NHCC recommendations and full submission here.

NHCC submits brain health recommendations to Finance Committee

NHCC urges the Government of Canada to commit to developing a Canadian Action Plan for Brain Health. NHCC provides detailed recommendations about how to move quickly toward an Action Plan in the submission to the Finance Committee for its 2019 pre-budget consultations. See the full submission here.

See a summary of the recommendations here.

Federal budget 2018 – NHCC analysis

NHCC is pleased that two issues for which we have been advocating were part of the federal government’s commitments in the 2018 budget tabled February 27. The first is a major investment in science and research. The second is a step toward establishing a national pharmacare program.  The budget also included funding for more support for people affected by dementia and autism spectrum disorder. See details here.

Canada needs an Action Plan for Brain Health now

NHCC urges the Government of Canada to immediately commit to developing a Canadian Action Plan for Brain Health to improve the lives of the four million+ Canadians living with brain conditions and their families.

See the detailed recommendations on our Public Policy page and in our position paper Driving Research to Action: Canadian Action Plan for Brain Health.

See a graphic depiction of the Action Plan here.

The ground-breaking National Population Health Study of Neurological Conditions clearly identified what it means to live with a brain condition in Canada right now. Learn how a brain condition is affecting one individual right now: Meagan’s Story

Quick facts from the Study

  • Unemployment among Canadians living with brain conditions is 12 times higher than the general population.
  • Canadians living with brain conditions use more health care services than those without a neurological condition or even those with other chronic conditions.
  • Half of all recipients of home care or in long-term care facilities have a brain condition.
  • Forty percent of children with brain conditions have limited educational opportunities.
  • Caregivers are essential to the well being of people living with brain conditions but caregivers often develop their own health problems including high levels of stress.
  • Without appropriate interventions, health care costs will increase significantly as will the overall impact on the Canadian economy.
  • By 2031, the number of Canadians with brain conditions will increase, and the number of people with Alzheimer’s disease and other dementias, Parkinson’s disease and traumatic brain injury is expected to double.

An Action Plan is needed now

The burden of brain conditions will only increase unless we take action now.  See more details on the National Population Health Study page and in the Study report: Mapping Connections: An Understanding of Neurological Conditions in Canada