Do you have questions about COVID-19?

NHCC member organizations have responded to the COVID-19 pandemic by offering
expert information, programs and services for their clients and members. Please
scroll to the bottom of the page for direct links to each member organization.

2019 Change-Maker award winners

Shirley Lee
Sprague Plato

See more details about these extraordinary individuals
here.

Surveys reveal COVID-19 has negative impact for people with brain conditions

In late April and early June, NHCC conducted two surveys about the impact of COVID-19 on Canadians affected by brain conditions and on member organizations. Not surprisingly, the pandemic has had a major negative impact on both individuals and organizations. See the summary here.

Michelle McDonald new chair Neurological Health Charities Canada

Toronto – February 25, 2020 – Governing Council of Neurological Health Charities
Canada welcomes Michelle McDonald as chair of NHCC, the leading coalition of
organizations that represent people with brain diseases, disorders and injuries
in Canada. She succeeds Joyce Gordon who is retiring as CEO of Parkinson Canada
and stepping down as chair of NHCC. Michelle is executive director of Brain
Injury Canada and an accomplished non-profit professional with two decades of
experience working in the sector in both Toronto and Ottawa. More details
here.

Canadians urgently need action on brain health

Brain conditions – brain illnesses, disorders and injuries – are one of the
leading causes of disability in Canada and, indeed, worldwide. One in three
Canadians (10 million) will have a brain condition in their lifetime – whether
from birth, early childhood, young adulthood, middle age or as seniors.
NHCC recommends that the Government of Canada follow up on its significant
initial investment in brain health research and commit resources to ensure
Canada takes immediate action on brain health by:

  • Recommendation #1: Working with NHCC to lead the
    development of Phase 2 brain health research focused at filling the
    knowledge gaps identified in the seminal report
    Mapping Connections;
  • Recommendation #2: Working with NHCC to test, in community
    settings, a new expanded model of chronic care for neurological conditions
    that has been identified as an immediate way to apply research findings to
    improve the lives of Canadians affected by brain conditions.

See more details
here.

Health care and health research were not  significant points of discussion
during the federal election campaign, however, the major parties have some
promises in their platforms. Please see the NHCC summary and the links to the
platforms below.</strong >

NHCC Summary of Party Promises

More information about why our recommendations are so important:

Mapping Connections: An Understanding of Neurological Conditions in Canada

NHCC supports Canadian Brain Research Strategy

Brain health research is critical in understanding the brain, one of the
greatest and most urgent scientific challenges of our time. One out of
three Canadians will be affected by a brain or nervous system illness, disorder
or injury in their lifetime. They need better diagnoses, prevention and
effective treatments. The Canadian Brain Research Strategy – developed by
Canadian neuroscience leaders – can be an integral part of NHCC’s vision of an
overall Canadian Brain Council  to spur unprecedented collaboration in research
and healthcare service delivery. See more information about the Canadian Brain
Research Strategy and how you can have input into the Strategy
here.

NHCC celebrates Royal Assent of Accessible Canada Act

Brain conditions are the largest cause of disability worldwide with one in three
Canadians affected by a brain or nervous system illness, disorder or injury,
including mental health conditions, within their lifetimes. NHCC celebrates the
Royal Assent of the Accessible Canada Act (June 21, 2019) and congratulates all
of those who helped make the legislation a reality.  See more details about the
Act at:
Making an accessible Canada for persons with
disabilities

In our recommendations for changes to the proposed federal Accessibility Act,
NHCC stressed the importance of  flexibility to ensure benefit for people living
with brain conditions.  See NHCC recommendations and full submission
here.

Federal budget 2018 – NHCC analysis

NHCC is pleased that
two issues for which we have been advocating were part of the federal
government’s commitments in the 2018 budget tabled February 27.</strong >
The first is a major investment in science and research. The second is a step
toward establishing a national pharmacare program.  The budget also included
funding for more support for people affected by dementia and autism spectrum
disorder. See details
here.

Canada needs an Action Plan for Brain Health now

NHCC urges the Government of Canada to immediately commit to developing a
Canadian Action Plan for Brain Health to improve the lives of
millions of Canadians living with brain conditions and their families. The
ground-breaking National Population Health Study of Neurological Conditions
clearly identified what it means to live with a brain condition in Canada right
now. Learn how a brain condition is affecting one individual right now:
Meagan’s Story

Quick facts from the Study

  • Unemployment among Canadians living with brain conditions is 12 times higher
    than the general population.
  • Canadians living with brain conditions use more health care services than
    those without a neurological condition or even those with other chronic
    conditions.
  • Half of all recipients of home care or in long-term care facilities have a
    brain condition.
  • Forty percent of children with brain conditions have limited educational
    opportunities.
  • Caregivers are essential to the well being of people living with brain
    conditions but caregivers often develop their own health problems including
    high levels of stress.
  • Without appropriate interventions, health care costs will increase
    significantly as will the overall impact on the Canadian economy.
  • By 2031, the number of Canadians with brain conditions will increase, and
    the number of people with Alzheimer’s disease and other dementias,
    Parkinson’s disease and traumatic brain injury is expected to double.

An Action Plan is needed now

The burden of brain conditions will only increase unless we take action now.
See more details on the
National Population Health Study
page and in the Study report:
Mapping Connections: An Understanding of Neurological Conditions in
Canada